|
Rank: Advanced Member  Groups: Registered
Joined: 12/4/2009 Posts: 331 Location: South London
|
Hello, Its another early start for me. I thought I might as well get up as lie with my eyes open. Its funny when you are really tired that you cant sleep! It was my own fault a recipe for disaster lieing in bed worrying then my leg started....Its more muscle heavy ache than bone. I hmm and hawed about taking some ibuprofen as wasnt sure if I could take it while on hydroxyc, but thought live wild and chucked one down. So i got up to have a cup of tea and then I put on the kettle and started on the forum. the silly thing is that I always worry about things that i cant do anything about or i just project negative outcomes. I think i need to follow my new years resolution and start pilates or yoga. Also I have had a nice break from hospitals as since september I have been to see at least a gp or hospital appointment once a week. It all kicks off again next week. I am having an mri of my shoulder cos for no reason a young guy charged at me (for reasons beyond me) while I was walking down the street and got me squarely in the shoulder and knocked me off my feet. That was in September. Saw consultant in December as pain was continous. Now I am thinking its either sorted or its RA in the shoulder, but funnily enough I amnt worried about that. I am worried about climate change... strange I know. I have had an mri once and i felt claustrophobic and it made such noise I thought hang on a sec isnt this suppose to be cutting edge and its clanking around as if its going to collapse.  But Iamnt worried about that either. i went to the supermarket today as running low on supplies and thought with this weather I best get something in for the next couple of days. Well it was like it was ransacked most of the frozen stuff had gone and reduced choice in veg and hardly any meat, but fruit shelves untouched.  We asked at the check out if they were having delivery problems or were people panick buying and it was confirmed that it was the latter. I even bought a chicken as it was the last one on teh shelf so its so easy for that attitude to spread.  Though I am pleased to say that other than that I stuck to my shopping list. Mind you I could always go on a fruit diet....
|
|
Rank: Advanced Member  Groups: Registered
Joined: 12/28/2009 Posts: 39
|
Hello, Wide awake at night, there you go, so many thoughts go round your head louder than my miserable sidetable radio! My thoughts were about how moody i have become. I have changed a lot in the last couple of months. The pain, the worry about how to explain to my friends and at work what i'm going through so to explain the change in my personality. I'm still cheerful when the pain is not keeping me awake all night or when i can take my tablets because my tummy is not too painful. But when, i'm off tablets, the moods change, i become depressed and in pain. Last night, i was thinking to write to my english mother (as i am originally from canada) to explain to her how i feel. You see, she's someone who's stuck with the idea that RA is like OA. That i should just get on with it  . It makes me angry that i have to go through all this explaining all the time about RA, and having to hear people's story about their aches and pain in return. I'm suppose to go back to Uni on a teacher's degree next september and yet, i don't know how i'm gonna be or what med i'm gonna be on. So many questions in head instead of a nice restful sleep. But MrsWoman, i have not made it to the computer to type this. I stayed in bed and eventually i fell asleep at around 5am Linda
|
|
Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 327
|
There's nothing worse than being sleepless when all you want to do is sleep, is there? Well, okay, there are worse things, but you don't think of them at the time, it would just drag you down further. I'm lucky, in that I'm retired, so if I can't sleep at night I just get up and do things I'd normally do during the day, knowing that, if necessary, I can catch up on my sleep the following day. If I stay in bed I find everything starts to hurt, so it's better for me to get up and do something to take my mind of the pain and to stop my mind going places I'd rather it didn't!
Anthea x
|
|
Rank: Advanced Member
Groups: Registered
Joined: 12/3/2009 Posts: 585
|
I was so tired last night snuggled up in bed just going to drop off Richard started to snore if I hit him once I hit him 5 times I ended up down stairs on the sofa (not very comfortable) he (Richard) came down at 7 asking what are you doing down here I was not a happy bunny went to bed then up at 10-30 hope to be asleep before he comes to bed tonight Mary L
|
|
Rank: Advanced Member  Groups: Registered
Joined: 12/5/2009 Posts: 48
|
Hi,
Glad to hear others don't sleep too well. I am ususally awake at about 4-4.30am every day. I then dose till 6ish when I get up to do the sheep and feed the cats. When I wake up the cats who sleep with me one on each side are fast asleep and often snoring. Oh to be a cat! I don't mind waking up in the summer as it is really lovely first thing when it is really quiet but like today when the snow is here I would love to sleep more.
Do you think it is to do with RA that sleep becomes disrupted as this happens to me even if I am not in pain. I have put it down to the drugs but would be interested to hear what others think.
Hope you are all warm enough and coping in the snow.
Jayne
PS My picture is of one of my sheep waiting to come in. She can open the gate if I am not quick enough.
|
|
Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 1,582 Location: Oxfordshire
|
I am sleeping so badly nowadays.
It is getting to sleep which is the hardest thing and then I wake through the night...
I am seeing my herbalist soon as this has become worse since I stopped the herbs and some of them were for sleeplessness.....a good way to see what is helping! LOL
Love, Amanda
|
|
Rank: Advanced Member  Groups: Registered
Joined: 12/4/2009 Posts: 312
|
I have been waking up during the night , more than once, sometimes. When my R.A was worse than it is now, I would wake up earlier than I wanted to, but get up anyway just to start moving about, have a shower to improve stiffness, etc. But since I have developed Spine problems I seem to wake up more often than before. Especially if I am worrying about any of my grown up kids. I know that it seems stupid really, but since this cold snap, I keep worrying about whether they are warm enough! (They are 33, 32 and 29! It is rediculous!) The 29 year old's central heating isn't working, but since he lived in a Teepee in Wales for at least a year, quite recently, at least I know that he has a flat over his head! At what point exactly, will I ever stop this worrying? Fiona
|
|
Rank: Advanced Member  Groups: Registered
Joined: 12/4/2009 Posts: 856
|
I rarely get a good night's sleep these days, although I know a lot of it is caused by stress at work- something I'm trying to deal wth. I managed to sleep quite well last week- until sunday night, when I knew I had to go back to work the next day.
|
|
Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 1,110 Location: London
|
Hi, I am often awake at night due to pain in hips and neck and shoulder, have 25mg amtitriptyline but doesnt always do the job. It worked ok whenI was off over the Christmas period, but now I am back working and have to be up at 5.45am it is really hard to get up. Even now my hips and back are painful just sitting here and I feel exhausted so will have a very early night! Fiona, you never stop worrying about your kids, doesnt matter how old they are, I hav 2 sons and a daughter grown up, but you still worry, then I have a 16yr old daughter too, so will still be worrying forever!! BARBARA
|
|
Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 263
|
I have sleep problems sometimes. It makes me feel a total wreck the next day. I have some relaxation CD'S sometimes they do help.They are quite helpfull for stress and depression which cause lack of sleep.They are hypnosis CD'S which i bought from amazon.You can get them for insomnia which you play at bedtime. I prefer to listen to them through the day. I think they are worth a try.
Kathleen Mc.
|
|
Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 1,740
|
Hi i ahd rough nite whihc was the norm until started amtripline for fibromialiga it makes em sually sleep right through with 1 wake up dozzy trip to toilet. last night huby was restless much like mary situ i nudged him many a time turned out he got blocked nose so snoring put ear plugs in all fine till early today neighbour tv on full blast early lol so got up bit late today. was so annoyed as wanted get out early before snow got worse lol.. i have realised i did not take enough pain relief last few nights so explains i coudltn get comfy lol. silly old me so tonight more stronegr ones along with ear plugs. hope u find way drop off il use my mini mp3 player to chill helps calming music. lv melly cuddly cats make my world seem so much more fun
|
|
Rank: Advanced Member  Groups: Registered
Joined: 12/4/2009 Posts: 331 Location: South London
|
Hi All, I really enjoyed reading all your posts. It seems we should be called the wide awake club. I hope I can get to sleep tonight otherwise I will be a grumpy woman with RA  . Consultant says its common thing to happen and wrote to my gp to give me something to sleep. But it doesnt happen a lot just some shortish phases of not being able to switch my mind off and/or not able to get comfortable. I dont know how I have ended up such a worrier. Recently I wrote down a list of my worries and put a column beside it for positive action. Amazingly it did help.  but obviously not completely as once I have resolved something .... the next one on the line jumps to my attention. Anwyay I enjoyed writing my thoughts this morning and it felt so cozy reading all your posts. Janye I love the picture of your sheep.
|
|
Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 1,582 Location: Oxfordshire
|
http://www.amazon.com/Ma...aperbacks/dp/0195111257
Seeing your last post Mari, reminded me of this book (above) that a psychiatrist gave me after I'd had an extremely traumatic birth with my last baby. I took it but never intended to read it as I don't like self-help books etc. However as my panic attacks soared and I became full of health anxieties about my future with long term RA plus other medical problems, I opened it and there are a few excelent sections on worrying and panic. Really worth buying. Oh well, I have been up since 8am and am awake but exhausted if that makes sense! Best go and try and get some sleep as i have a very busy day tomorrow! Love, Amanda
|
|
Rank: Advanced Member  Groups: Registered
Joined: 12/4/2009 Posts: 331 Location: South London
|
Hi Amanda yes i do get panic attacks. thanks for the book recommendation I will put it in my basket Hope you had a good night sleep. Mari
|
|
Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 1,582 Location: Oxfordshire
|
Thanks Mari! I didn't , did you?!
Getting SO fed up now, especially as next week I will begin lessons with the children and need to be awake at a reasonable hour!! LOL
Love, Amanda
|
|
Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 1,740
|
I had better night till neighbours put v on full blast this morning lol as no school. ahh book looks good amanda. ive had 5 panic attacks over years and 3 of those recently. 2 at church of all places due to noise large volume people silly really. linked largely to facial lupus flare up oh hives temp and panic at same time lol. i will conquer them. did before god can do anything. he can get u sound asleep and keep u so. feel for you with 5 little uns to teach and lack sleep. melly cuddly cats make my world seem so much more fun
|
|
Rank: Advanced Member  Groups: Registered
Joined: 12/10/2009 Posts: 653 Location: Notts
|
I used to sleep really badly before I had RA, that was caused by years of stress. Now I take amitriptyline and usually sleep quite well.
There's nothing worse than being awake in the night, worrying about how you will cope the following day. Being retired now, it isn't a problem for me, but I remember when it was.
Lyn
|
|
Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 561
|
I take sleeping tablets a couple of times a week i know they are addictive but if i dont i just wont sleep and have to get up at 6.50 and get moving so i can be ready to take son to school ,if i dont get some sleep i am terrified driving as i get very stressed out x
|
|
Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 1,582 Location: Oxfordshire
|
Do you know Sophie, I am SO tempted to just take a weeny bit of Diazepam ( have them from the horrendous hip pain) but I lay there panicking about taking them! And so I don't and then cannot sleep! MADNESS!
Every night I say right I will take something tonight and then don't.
Hope you sleep beautifully tonight!
Amanda
|
|
Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 1,740
|
umm yes well i been taking amtirpline to late just realised last night right time slept righ threw. the trick is also to calm ones mind down an hour before bed. ps ive seen the fab body pillow jennis uses shall be saving up for 1 for when get to pregant stage.hope tonight u get good sleep all of u struggling. melly cuddly cats make my world seem so much more fun
|
|
|
|